badge CLINICAL PHARMACOLOGIST AND THOUGHTS OF A DOCTOR

Saturday, April 11, 2015

ARE THEY SINNED TO DIE:


                               Pharmaceutical research companies mostly invest in disease which are very common. Rare diseases are mostly excluded from the research activities owing to the poor market available for the  marketing of the drug once it is developed. It is known and well accepted fact that it takes millions for developing a particular drug. But in this era of 20 th century HUMANITY ALSO SHOULD BE TAKEN INTO CONSIDERARTION AND DRUGS NEED TO BE DEVELOPED FOR THE RARE DISEASE TOO.

                                 THESE ARE RARE DISEASES BY DEFINITION BUT A WELL NUMBER OF PEOPLE DIE ALL AROUND THE WORLD. Example of some of the rare diseases are like Rabies where a well over than 50,000people die each year and it has 100%moratlity rate.


                           And we even doctors are not interested in treating the rare disease patient stating that there is no treatment available. There might some research being done and some data might be present in the world. We as doctors should be aware of those data while treating those kind of patient and should try those procedures , so that further data are available for framing a treatment in the future.
Here is a list of rare diseases of India
Acromegaly
Coarctation of the Aorta
Ehlers-Danlos Syndrome
Epstein's Anomaly
Handigodu Syndrome
Kyasanur Forest Disease
Madras Motor Neuron Disease
Muscular Dystrophy
Porphyria Cutanea Tarda
Pulmonic Valvular Stenosis
Rabies
Sporotrichosis

 

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